Key:
Centres of Excellence
DMD Hub sites
Alder Hey
Birmingham
Bristol
Glasgow
Leeds
Future Hub sites
Cambridge
London - Evelina
Manchester
Oswestry
Site Information
Expanding Trial Capacity
Great Ormond Street Hospital NHS Foundation Trust
Centre of Excellence
Great Ormond Street Hospital is one of the world’s leading children’s hospitals with the broadest range of dedicated, children’s healthcare specialists under one roof in the UK. The hospital’s pioneering…
Department Name
Dubowitz Neuromuscular Unit
Website
Website link
Telephone
+44 (0)20 7905 2111 (Internal Ext. 42111)
Primary Email Address
janet.nicholas@ucl.ac.uk;emma.pendleton@gosh.nhs.uk
Primary Contacts
Patients: DrAdnanManzur, adnan.manzur@gosh.nhs.uk
Industry: ProfessorFrancescoMuntoni, f.muntoni@ucl.ac.uk
National Institute for Health Research (NIHR) Contact:
Caroline Williams, caroline.williams@nihr.ac.uk
Industry: ProfessorFrancescoMuntoni, f.muntoni@ucl.ac.uk
National Institute for Health Research (NIHR) Contact:
Caroline Williams, caroline.williams@nihr.ac.uk
Newcastle University and Newcastle upon Tyne NHS Hospital Foundation Trust
Centre of Excellence
Newcastle University has an excellent pedigree in research and teaching with a strong interdisciplinary research base. In the UK it ranks in the top 5 for both hospital- and laboratory-based clinical subjects, with two-thirds of…
Department Name
John Walton Muscular Dystrophy Research Centre
Website
Website link
Telephone
+44 (0) 191 241 8610
Primary Email Address
Primary Contacts
Patients: Katherine.Frith@newcastle.ac.uk
Industry: Anna.Peel1@newcastle.ac.uk
National Institute for Health Research (NIHR) Contact:
Steven Pratt, stevenpratt@nhs.net
Industry: Anna.Peel1@newcastle.ac.uk
National Institute for Health Research (NIHR) Contact:
Steven Pratt, stevenpratt@nhs.net
Alder Hey Children's NHS Foundation Trust
Hub site
Alder Hey is a leading paediatric research centre. Our aim is to be a world class centre for research, innovation and education, and we aim to pioneer and develop new treatments for children and young people. This is made…
Department Name
Clinical Research Division
Website
Website link
Telephone
+44 151 252 5570
Primary Email Address
research@alderhey.nhs.uk
Primary Contacts
Patients: NMR@alderhey.nhs.uk
Industry: Aiste.Adomaviciene@alderhey.nhs.uk
National Institute for Health Research (NIHR) Contact:
Vicky Wilkinson, vicky.wilkinson@nihr.ac.uk
Industry: Aiste.Adomaviciene@alderhey.nhs.uk
National Institute for Health Research (NIHR) Contact:
Vicky Wilkinson, vicky.wilkinson@nihr.ac.uk
Birmingham Heartlands Hospital, University Hospitals Birmingham NHS Foundation Trust
Hub site
Birmingham Heartlands Hospital hosts a neuromuscular service for children as well as a respiratory service for adults and children with neuromuscular conditions. The children’s Neuromuscular service provides diagnostic…
Department Name
Paediatric Neuromuscular clinic
Website
Website link
Telephone
0121 424 3687
Primary Email Address
helen.roper@heartofengland.nhs.uk, deepak.parasuraman@heartofengland.nhs.uk
Primary Contacts
Patients: PaediatricResearch@heartofengland.nhs.uk
Industry: PaediatricResearch@heartofengland.nhs.uk, deepak.parasuraman@heartofengland.nhs.uk
National Institute for Health Research (NIHR) Contact:
Linda Porter, linda.porter@nihr.ac.uk
Industry: PaediatricResearch@heartofengland.nhs.uk, deepak.parasuraman@heartofengland.nhs.uk
National Institute for Health Research (NIHR) Contact:
Linda Porter, linda.porter@nihr.ac.uk
Bristol Royal Hospital for Children
Hub site
In the Southwest, Bristol and Plymouth are two hubs of the South West Neuromuscular Operational Delivery Network (SWNODN) which provides care to over 6000 adults and children with various neuromuscular conditions. We are…
Department Name
Department of Paediatric Neurology
Website
Website link
Telephone
00 44 117 342 0502
Primary Email Address
jane.berry3@UHBristol.nhs.uk
Primary Contacts
Patients: AnirbanMajumdar, anirban.majumdar@uhbristol.nhs.uk
Industry: AnirbanMajumdar, anirban.majumdar@uhbristol.nhs.uk
National Institute for Health Research (NIHR) Contact:
Chantal Sunter, chantal.sunter@nihr.ac.uk
Industry: AnirbanMajumdar, anirban.majumdar@uhbristol.nhs.uk
National Institute for Health Research (NIHR) Contact:
Chantal Sunter, chantal.sunter@nihr.ac.uk
Royal Hospital for Children, Glasgow
Hub site
The new Royal Hospital for Children opened its doors on 10th June 2015. It is a tertiary referring centre accepting patients from the West of Scotland encompassing six territorial Health Board areas. It also accepts referrals…
Department Name
Fraser of Allander Neurosciences Department
Website
Website link
Telephone
0141 201 0000
Primary Email Address
marina.dimarco@nhs.net
Primary Contacts
Patients: JenniferDunne, jennifer.dunne@ggc.scot.nhs.uk
Industry: IainHorrocksandShukoJoseph, iain.horrocks@nhs.netandshuko.joseph@glasgow.ac.uk
National Institute for Health Research (NIHR) Contact:
Stuart Ralston, Stuart.Ralston@ed.ac.uk
Industry: IainHorrocksandShukoJoseph, iain.horrocks@nhs.netandshuko.joseph@glasgow.ac.uk
National Institute for Health Research (NIHR) Contact:
Stuart Ralston, Stuart.Ralston@ed.ac.uk
Leeds Teaching Hospitals NHS Trust (LTHT)
Hub site
The children’s neuromuscular service in Leeds was established in 1992 and provides support to the 1 million or so children in what was the old ‘Yorkshire Health Authority’. Over the years the service has grown…
Department Name
Paediatric Neurology
Website
Website link
Telephone
+44 113 3923113
Primary Email Address
Anne-Marie.Childs@nhs.net
Primary Contacts
Patients: DrAnne-MarieChilds, Anne-Marie.Childs@nhs.net
Industry: DrAnne-MarieChilds, Anne-Marie.Childs@nhs.net
National Institute for Health Research (NIHR) Contact:
Fiona Halstead, fiona.halstead@nihr.ac.uk
Industry: DrAnne-MarieChilds, Anne-Marie.Childs@nhs.net
National Institute for Health Research (NIHR) Contact:
Fiona Halstead, fiona.halstead@nihr.ac.uk
Addenbrooke's Hospital
Future Hub site
Addenbrooke’s is a tertiary referral hospital for East Anglia. The Paediatric Neuromuscular team is a centre of excellence accepting tertiary Neuomuscular referrals within the region. We are part of the North Star Network…
Department Name
Department of Paediatric Neurology
Website
Website link
Telephone
044-1223 216662
Primary Email Address
deepa.krishnakumar@addenbrookes.nhs.ukgautam.ambegaonkar@addenbrookes.nhs.uk
Primary Contacts
National Institute for Health Research (NIHR) Contact:
Heather Phillips, heather.phillips@nihr.ac.uk
Heather Phillips, heather.phillips@nihr.ac.uk
Evelina London Children's Hospital
Future Hub site
Evelina London Children’s Hospital is part of the Guy’s and St Thomas’ Hospital Trust and is the hub for providing tertiary level neuromuscular care to children and young people in the South East Thames region…
Department Name
Paediatric Neurosciences
Website
Website link
Telephone
00447471021158
Primary Email Address
David.Daniels1@gstt.nhs.uk
Primary Contacts
Patients: DavidDaniels, David.Daniels1@gstt.nhs.uk
Industry: VasanthaGowda, Vasantha.Gowda@gstt.nhs.uk
National Institute for Health Research (NIHR) Contact:
Robert Pleass, robert.pleass@nihr.ac.uk
Industry: VasanthaGowda, Vasantha.Gowda@gstt.nhs.uk
National Institute for Health Research (NIHR) Contact:
Robert Pleass, robert.pleass@nihr.ac.uk
Royal Manchester Children's Hospital, Manchester University Hospitals NHS Foundation Trust
Future Hub site
Manchester University NHS Foundation Trust (MFT) was formed on 1st October 2017 following the merger of Central Manchester University Hospitals NHS Foundation Trust (CMFT) and University Hospital of South Manchester NHS…
Department Name
Paediatric Neurology
Website
Website link
Telephone
+44 (0) 161 7012544
Primary Email Address
imelda.hughes@mft.nhs.uk
Primary Contacts
Patients: JanetJohnson, janet.johnson@mft.nhs.uk
Industry: ImeldaHughes, imelda.hughes@mft.nhs.uk
National Institute for Health Research (NIHR) Contact:
Joanne Collins, joanne.collins@nihr.ac.uk
Industry: ImeldaHughes, imelda.hughes@mft.nhs.uk
National Institute for Health Research (NIHR) Contact:
Joanne Collins, joanne.collins@nihr.ac.uk
Robert Jones and Agnes Hunt Hospital
Future Hub site
Robert Jones and Agnes Hunt hospital has a national and international reputation for orthopaedic surgery and musculoskeletal medicine, including research into disorders of bone, joints and muscles. Services and research…
Department Name
Muscle Team
Website
Website link
Telephone
+44 (0)1691 404047
Primary Email Address
Tracey.willis1@nhs.net
Primary Contacts
National Institute for Health Research (NIHR) Contact:
Linda Porter, linda.porter@nihr.ac.uk
Linda Porter, linda.porter@nihr.ac.uk