Where are the DMD Hub Sites?

Our ambition is to establish and support a network of DMD clinical trials sites in the UK.

Key:

 

Centres of Excellence

London - GOSH
Newcastle

 

DMD Hub sites

Alder Hey
Birmingham
Bristol
Glasgow
Leeds
London - Evelina
Manchester
Oswestry
Oxford

 

Future Hub sites

None Listed

 

Other Trial Sites

Preston
Cambridge
Queens Square
Sheffield
Temple Street

 

Site Information

Expanding Trial Capacity


You may need to zoom in closer to see some sites on the map that are close together (e.g. London)

Great Ormond Street Hospital NHS Foundation Trust

Centre of Excellence

Department Name
Dubowitz Neuromuscular Unit
Website
Website link
Telephone
+44 (0)20 7905 2111 (Internal Ext. 42111)
Primary Email Address
clinicaltrials.neuromuscular@gosh.nhs.uk
Primary Contacts
Patients: DrAdnanManzur, adnan.manzur@gosh.nhs.uk
Industry: ProfessorFrancescoMuntoni, f.muntoni@ucl.ac.uk
National Institute for Health Research (NIHR) Contact:
Caroline Williams, caroline.williams@nihr.ac.uk
 

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Newcastle University and The Newcastle upon Tyne Hospitals NHS Foundation Trust

Centre of Excellence

Department Name
John Walton Muscular Dystrophy Research Centre
Website
Website link
Telephone
+44 (0) 191 241 8610
Primary Email Address
Primary Contacts
Patients: nmd.clinicaltrials@newcastle.ac.uk
Industry: nmd.clinicaltrials@newcastle.ac.uk
National Institute for Health Research (NIHR) Contact:
Steven Pratt, stevenpratt@nhs.net
 

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Alder Hey Children's NHS Foundation Trust

Hub site

Department Name
Clinical Research Division
Website
Website link
Telephone
+44 151 252 5570
Primary Email Address
research@alderhey.nhs.uk
Primary Contacts
Patients: neuromuscularresearch@alderhey.nhs.uk
Industry: Aiste.Adomaviciene@alderhey.nhs.uk
National Institute for Health Research (NIHR) Contact:
Vicky Wilkinson, vicky.wilkinson@nihr.ac.uk
 

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University Hospitals Birmingham NHS Foundation Trust – Birmingham Heartlands Hospital

Hub site

Department Name
Paediatric Neuromuscular Service
Website
Website link
Telephone
0121 424 3687
Primary Email Address
zoya.alhaswani@heartofengland.nhs.uk, deepak.parasuraman@heartofengland.nhs.uk
Primary Contacts
Patients: Muscle.Team@heartofengland.nhs.uk
Industry: PaediatricResearch@heartofengland.nhs.uk
National Institute for Health Research (NIHR) Contact:
Linda Porter, linda.porter@nihr.ac.uk
 

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Bristol Royal Hospital for Children

Hub site

Department Name
Department of Paediatric Neurology
Website
Website link
Telephone
00 44 117 342 0502
Primary Email Address
jane.berry3@UHBristol.nhs.uk;
Primary Contacts
Patients: AnirbanMajumdar, anirban.majumdar@uhbristol.nhs.uk
Industry: AnirbanMajumdar, anirban.majumdar@uhbristol.nhs.uk
National Institute for Health Research (NIHR) Contact:
Chantal Sunter, chantal.sunter@nihr.ac.uk
 

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Royal Hospital for Children, Glasgow

Hub site

Department Name
Fraser of Allander Neurosciences Department
Website
Website link
Telephone
0141-451-6527
Primary Email Address
Marina.DiMarco@ggc.scot.nhs.uk
Primary Contacts
Patients: JenniferDunne, jennifer.dunne@ggc.scot.nhs.uk
Industry: IainHorrocks, Iain.Horrocks@ggc.scot.nhs.uk
National Institute for Health Research (NIHR) Contact:
Stuart Ralston, Stuart.Ralston@ed.ac.uk
 

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Leeds Teaching Hospitals NHS Trust (LTHT)

Hub site

Department Name
Paediatric Neurology
Website
Website link
Telephone
Primary Email Address
Primary Contacts
Patients: NaomiBarkby, n.barkby@nhs.net
National Institute for Health Research (NIHR) Contact:
Fiona Halstead, fiona.halstead@nihr.ac.uk
 

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Evelina London Children's Hospital

Hub site

Department Name
Paediatric Neurosciences
Website
Website link
Telephone
00447471021158
Primary Email Address
v.gowda@nhs.net
Primary Contacts
Patients: Vasantha.Gowda@gstt.nhs.uk
Industry: Vasantha.Gowda@gstt.nhs.uk
National Institute for Health Research (NIHR) Contact:
robert.pleass@nihr.ac.uk
 

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Royal Manchester Children's Hospital, Manchester University Hospitals NHS Foundation Trust

Hub site

Department Name
Paediatric Neurology
Website
Website link
Telephone
+44 (0) 161 7012346
Primary Email Address
imelda.hughes@mft.nhs.uk
Primary Contacts
Patients: JanetJohnson, janet.johnson@mft.nhs.uk
Industry: ImeldaHughes, imelda.hughes@mft.nhs.uk
National Institute for Health Research (NIHR) Contact:
Joanne Collins, joanne.collins@nihr.ac.uk
 

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Robert Jones and Agnes Hunt Hospital

Hub site

Department Name
Muscle Team
Website
Website link
Telephone
+44 (0)1691 404047
Primary Email Address
Tracey.willis1@nhs.net, chloe.perry2@nhs.net,james.jones9@nhs.net
Primary Contacts
National Institute for Health Research (NIHR) Contact:
Linda Porter, linda.porter@nihr.ac.uk
 

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MDUK Oxford Neuromuscular Centre, University of Oxford

Hub site

Department Name
University of Oxford and Oxford University Hospitals NHS Foundation Trust
Website
Website link
Telephone
Primary Email Address
laura.chiverton@paediatric.ox.ac.uk
Primary Contacts
Patients: LauraChiverton, laura.chiverton@paediatrics.ox.ac.uk
 

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Lancashire Teaching Hospitals NHS Foundation Trust; Royal Preston Hospital

Other Trial Site

Department Name
Paediatric Research
Website
Website link
Telephone
+441772 522246
Primary Email Address
Candiss.argent@lthtr.nhs.uk;paula.sugden@lthtr.nhs.uk
Primary Contacts
Patients: PaulaSugden;CandissArgent, Candiss.argent@lthtr.nhs.uk;paula.sugden@lthtr.nhs.uk
 

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Addenbrooke's Hospital

Other Trial Site

Department Name
Department of Paediatric Neurology
Website
Website link
Telephone
044-1223 216662
Primary Email Address
fay.houchen@addenbrookes.nhs.uk
Primary Contacts
Patients: NeuromuscularNurseSpecialist&PaediatricNeuromuscularResearchNurse-FayHouchen, Fay.houchen@addenbrookes.nhs.uk
Industry: Dr.GautamAmbegaonkar/Dr.DeepaKrishnakumar-, Gautam.ambegaonkar@addenbrookes.nhs.uk;Deepa.krishnakumar@addenbrookes.nhs.uk
National Institute for Health Research (NIHR) Contact:
Heather Phillips, heather.phillips@nihr.ac.uk
 

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National Hospital for Neurology and Neurosurgery (Queens Square)

Other Trial Site

Department Name
Queens Square Centre for Neuromuscular Disease
Website
Website link
Telephone
+44203 4488132
Primary Email Address
r.quinlivan@ucl.ac.uk
Primary Contacts
 

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Sheffield Children's NHS Foundation Trust

Other Trial Site

Department Name
Neuromuscular Clinic
Website
Website link
Telephone
+44 114 271 7000
Primary Email Address
sheffield.muscle@nhs.net
Primary Contacts
Patients: DrMinOng, sheffield.muscle@nhs.net
 

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Children's Health Ireland, Temple Street

Other Trial Site

Department Name
Neurology Department
Website
Website link
Telephone
+353 1 878 4200
Primary Email Address
Primary Contacts
Patients: LucyCoy, lucy.coy@cuh.ie
Industry: DrDeclanO'Rourke, declan.orourke@cuh.ie
 

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