Where are the DMD Hub Sites?

Telephone

+44 (0)20 7905 2111 (Internal Ext. 42111)

Primary Email Address

janet.nicholas@ucl.ac.uk;emma.pendleton@gosh.nhs.uk

Primary Contacts

Patients: DrAdnanManzur, adnan.manzur@gosh.nhs.uk
Industry: ProfessorFrancescoMuntoni, f.muntoni@ucl.ac.uk
National Institute for Health Research (NIHR) Contact:
Caroline Williams, caroline.williams@nihr.ac.uk

Newcastle University and The Newcastle upon Tyne Hospitals NHS Foundation Trust

Centre of Excellence

Newcastle University has an excellent pedigree in research and teaching with a strong interdisciplinary research base. In the UK, it ranks in the top 5 for both hospital- and laboratory-based clinical subjects, with two-thirds…

Department Name

John Walton Muscular Dystrophy Research Centre

Website

Telephone

+44 (0) 191 241 8610

Primary Email Address

Primary Contacts

Patients: Katherine.Frith@newcastle.ac.uk
Industry: nmd.clinicaltrials@newcastle.ac.uk
National Institute for Health Research (NIHR) Contact:
Steven Pratt, stevenpratt@nhs.net

Alder Hey Children's NHS Foundation Trust

Hub site

Alder Hey one of Europe’s largest children’s hospitals and is a leading paediatric research centre. Its aim is to be the premier world class centre for research, innovation and education, and we aim to pioneer and…

Department Name

Clinical Research Division

Website

Telephone

+44 151 252 5570

Primary Email Address

research@alderhey.nhs.uk

Primary Contacts

Patients: neuromuscularresearch@alderhey.nhs.uk
Industry: Aiste.Adomaviciene@alderhey.nhs.uk
National Institute for Health Research (NIHR) Contact:
Vicky Wilkinson, vicky.wilkinson@nihr.ac.uk

University Hospitals Birmingham NHS Foundation Trust – Birmingham Heartlands Hospital

Hub site

University Hospitals Birmingham NHS Trust is a national centre for specialist clinical services, home to leading clinical research and one of the largest teaching hospital trusts in England. Birmingham Heartlands Hospital…

Department Name

Paediatric Neuromuscular Service

Website

Telephone

0121 424 3687

Primary Email Address

zoya.alhaswani@heartofengland.nhs.uk, deepak.parasuraman@heartofengland.nhs.uk

Primary Contacts

Patients: Muscle.Team@heartofengland.nhs.uk
Industry: PaediatricResearch@heartofengland.nhs.uk
National Institute for Health Research (NIHR) Contact:
Linda Porter, linda.porter@nihr.ac.uk

Bristol Royal Hospital for Children

Hub site

In the Southwest, Bristol and Plymouth are two hubs of the South West Neuromuscular Operational Delivery Network (SWNODN) which provides care to over 6000 adults and children with various neuromuscular conditions. We are…

Department Name

Department of Paediatric Neurology

Website

Telephone

00 44 117 342 0502

Primary Email Address

jane.berry3@UHBristol.nhs.uk;Mashal.Asif@uhbristol.nhs.uk

Primary Contacts

Patients: AnirbanMajumdar, anirban.majumdar@uhbristol.nhs.uk
Industry: AnirbanMajumdar, anirban.majumdar@uhbristol.nhs.uk
National Institute for Health Research (NIHR) Contact:
Chantal Sunter, chantal.sunter@nihr.ac.uk

Royal Hospital for Children, Glasgow

Hub site

The new Royal Hospital for Children opened its doors on 10th June 2015. It is a tertiary referring centre, accepting patients from the West of Scotland encompassing six territorial Health Board areas. It also accepts referrals…

Department Name

Fraser of Allander Neurosciences Department

Website

Telephone

0141-451-6527

Primary Email Address

Marina.DiMarco@ggc.scot.nhs.uk

Primary Contacts

Patients: JenniferDunne, jennifer.dunne@ggc.scot.nhs.uk
Industry: IainHorrocks, Iain.Horrocks@ggc.scot.nhs.uk
National Institute for Health Research (NIHR) Contact:
Stuart Ralston, Stuart.Ralston@ed.ac.uk

Leeds Teaching Hospitals NHS Trust (LTHT)

Hub site

The Children’s Neuromuscular service in Leeds was established in 1992 and provides support to the 1 million or so children in what was the old ‘Yorkshire Health Authority’. Over the years, the service has grown…

Department Name

Paediatric Neurology

Website

Telephone

Primary Email Address

asyah.chhibda@nhs.net

Primary Contacts

Patients: AsyahChhibda, asyah.chhibda@nhs.net
National Institute for Health Research (NIHR) Contact:
Fiona Halstead, fiona.halstead@nihr.ac.uk

Evelina London Children's Hospital

Hub site

Evelina London Children’s Hospital is part of the Guy’s and St Thomas’ Hospital Trust and is the hub for providing tertiary level neuromuscular care to children and young people in the South East Thames region…

Department Name

Paediatric Neurosciences

Website

Telephone

00447471021158

Primary Email Address

David.Daniels1@gstt.nhs.uk

Primary Contacts

Patients: DavidDaniels, David.Daniels1@gstt.nhs.uk
Industry: VasanthaGowda, Vasantha.Gowda@gstt.nhs.uk
National Institute for Health Research (NIHR) Contact:
Robert Pleass, robert.pleass@nihr.ac.uk

Royal Manchester Children's Hospital, Manchester University Hospitals NHS Foundation Trust

Hub site

Manchester University NHS Foundation Trust (MFT) was formed on 1st October 2017 following the merger of Central Manchester University Hospitals NHS Foundation Trust (CMFT) and University Hospital of South Manchester NHS…

Department Name

Paediatric Neurology

Website

Telephone

+44 (0) 161 7012346

Primary Email Address

imelda.hughes@mft.nhs.uk

Primary Contacts

Patients: JanetJohnson, janet.johnson@mft.nhs.uk
Industry: ImeldaHughes, imelda.hughes@mft.nhs.uk
National Institute for Health Research (NIHR) Contact:
Joanne Collins, joanne.collins@nihr.ac.uk

Robert Jones and Agnes Hunt Hospital

Hub site

Robert Jones and Agnes Hunt hospital has a national and international reputation for orthopaedic surgery and musculoskeletal medicine, including research into disorders of bone, joints and muscles. Services and research…

Department Name

Muscle Team

Website

Telephone

+44 (0)1691 404047

Primary Email Address

Tracey.willis1@nhs.net

Primary Contacts

National Institute for Health Research (NIHR) Contact:
Linda Porter, linda.porter@nihr.ac.uk

MDUK Oxford Neuromuscular Centre, University of Oxford

Hub site

The MDUK Oxford Neuromuscular Centre (www.onmc.ox.ac.uk) was initiated through a partnership between Muscular Dystrophy UK and the University of Oxford. A 5-year Centre funding award from the charity and a significant investment…

Department Name

University of Oxford and Oxford University Hospitals NHS Foundation Trust

Website

Telephone

Primary Email Address

childneuromuscular@ouh.nhs.uk

Primary Contacts

Patients: AaronLong, aaron.long@paediatrics.ox.ac.uk
Industry: DrJaclynNicoleleGrand, nicole.legrand@paediatrics.ox.ac.uk

Addenbrooke's Hospital

Other Trial Site

Addenbrooke’s is a tertiary referral hospital for East Anglia. The Paediatric Neuromuscular team is a Centre of Excellence accepting tertiary Neuomuscular referrals within the region. We are part of the NorthStar Network…

Department Name

Department of Paediatric Neurology

Website

Telephone

044-1223 216662

Primary Email Address

fay.houchen@addenbrookes.nhs.uk

Primary Contacts

Patients: NeuromuscularNurseSpecialist&PaediatricNeuromuscularResearchNurse-FayHouchen, Fay.houchen@addenbrookes.nhs.uk
Industry: Dr.GautamAmbegaonkar/Dr.DeepaKrishnakumar-, Gautam.ambegaonkar@addenbrookes.nhs.uk;Deepa.krishnakumar@addenbrookes.nhs.uk
National Institute for Health Research (NIHR) Contact:
Heather Phillips, heather.phillips@nihr.ac.uk

National Hospital for Neurology and Neurosurgery (Queens Square)

Other Trial Site

The National Hospital and Institute of Neurology is a world leading centre of excellence for clinical care and research into neurological diseases.

Department Name

Queens Square Centre for Neuromuscular Disease

Website

Telephone

+44203 4488132

Primary Email Address

r.quinlivan@ucl.ac.uk

Primary Contacts

Children's Health Ireland, Temple Street

Other Trial Site

Department Name

Neurology Department

Website

Telephone

+353 1 878 4200

Primary Email Address

Primary Contacts

Patients: LucyCoy, lucy.coy@cuh.ie
Industry: DrDeclanO'Rourke, declan.orourke@cuh.ie