News and updates with the latest clinical trials, medical reports and interesting developments within the DMD community.
We are pleased to share with you the DMD Hub Impact Report 2020.
The DMD Hub is building networks for the different staff involved in running clinical trials, to support all the DMD Hub sites around the UK to run more trials; so more patients with DMD can access research.
We are pleased to announce that Sarepta's Phase 2 MOMENTUM trial is now recruiting in the UK at Alder Hey Children's NHS Foundation Trust.
Today, we’re pleased to share an update from Mashal Asif who is the DMD Hub Clinical Trial Coordinators at Bristol Royal Hospital for Children
Bristol officially joined the DMD Hub in 2018, with £41,151 in funding for a Clinical Trial Coordinator post. The funding for this post is kindly supported by the Mulberry Trust.
Today, we’re speaking to Tracy Langan, from the Royal Hospital for Children Glasgow about her experiences as a DMD Hub Trial Coordinator.
Glasgow joined the DMD Hub in 2020, with £183,760 to fund three posts – Consultant Paediatric Neurologist, Trial Coordinator and Research Physiotherapist.
We would like to thank Project Go, a Duchenne UK Family Fund, and all their supporters, for contributing funds towards the Research Physiotherapist role.
The DMD Hub is building networks of support for the different people involved in running clinical trials, to support all the DMD Hub sites around the UK to run more trials, so more patients with DMD can access research.
This week, we’re pleased to be sharing details about one of these support networks: the DMD Hub Clinical Trial Coordinator Network. We’ll also be profiling three DMD Hub Trial Coordinators who all work at different DMD Hub sites supporting clinical trials.
Yesterday, Duchenne UK hosted a webinar about the DMD Hub.
Our co-founders, Emily and Alex, were joined by Emma Heslop, DMD Hub Manager, and Michela Guglieri, Honorary Consultant at the John Walton Centre Newcastle. The webinar provided an update on our plans, through the DMD Hub, to support gene therapy trials coming to the UK and how we are working with DMD Hub Hospital sites to plan for re-opening clinical research facilities, given the restrictions put in place due to COVID-19.
The COVID-19 pandemic has been challenging for the Duchenne community and the neuromuscular centres where patients attend for appointments and to take part in clinical trials.
The DMD Hub has continued to play a key coordination role between sites, sponsors and patients involved in clinical research.
In these very difficult and uncertain time for us all in the Duchenne community, we want to reassure you that we are doing everything we can to stay on top of the situation as it develops.