Gene Therapy is a promising new treatment for DMD and the DMD Hub is committed to making the recruitment process to these trials as clear as possible for the patient community

Important findings about the readiness of the UK to host clinical trials in gene therapy, have been published in the Journal for Neuromuscular Disorders.

We are pleased to share with you the DMD Hub Impact Report 2020.

The DMD Hub is building networks for the different staff involved in running clinical trials, to support all the DMD Hub sites around the UK to run more trials; so more patients with DMD can access research.

We are pleased to announce that Sarepta's Phase 2 MOMENTUM trial is now recruiting in the UK at Alder Hey Children's NHS Foundation Trust.

Today, we’re pleased to share an update from Mashal Asif who is the DMD Hub Clinical Trial Coordinators at Bristol Royal Hospital for Children

Bristol officially joined the DMD Hub in 2018, with £41,151 in funding for a Clinical Trial Coordinator post. The funding for this post is kindly supported by the Mulberry Trust.

Today, we’re speaking to Tracy Langan, from the Royal Hospital for Children Glasgow about her experiences as a DMD Hub Trial Coordinator.

Glasgow joined the DMD Hub in 2020, with £183,760 to fund three posts – Consultant Paediatric Neurologist, Trial Coordinator and Research Physiotherapist.

We would like to thank Project Go, a Duchenne UK Family Fund, and all their supporters, for contributing funds towards the Research Physiotherapist role.

The DMD Hub is building networks of support for the different people involved in running clinical trials, to support all the DMD Hub sites around the UK to run more trials, so more patients with DMD can access research.

This week, we’re pleased to be sharing details about one of these support networks: the DMD Hub Clinical Trial Coordinator Network. We’ll also be profiling three DMD Hub Trial Coordinators who all work at different DMD Hub sites supporting clinical trials.