DMD Hub News
News and updates with the latest clinical trials, medical reports and interesting developments within the DMD community.
DMD Hub News
- DMD Hub used as a showcase by the National Institute for Health Research
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This week we were delighted to have been featured in a publication from the National Institute for Health Research (NIHR), who have highlighted the DMD Hub, as an example of how they work alongside industry to support clinical trials.
- 28 April 2021
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- Gene Therapy Recruitment Statement
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Gene Therapy is a promising new treatment for DMD and the DMD Hub is committed to making the recruitment process to these trials as clear as possible for the patient community
- 24 February 2021
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- Recommendations for gene therapy trials preparedness published in Journal for Neuromuscular Disorders
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Important findings about the readiness of the UK to host clinical trials in gene therapy, have been published in the Journal for Neuromuscular Disorders.
- 02 February 2021
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- DMD Hub Impact Report 2020
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We are pleased to share with you the DMD Hub Impact Report 2020.
- 02 December 2020
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- DMD Hub Nurses Network
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The DMD Hub is building networks for the different staff involved in running clinical trials, to support all the DMD Hub sites around the UK to run more trials; so more patients with DMD can access research.
- 23 November 2020
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- Sarepta MOMENTUM Phase 2 clinical trial now recruiting in the UK
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We are pleased to announce that Sarepta's Phase 2 MOMENTUM trial is now recruiting in the UK at Alder Hey Children's NHS Foundation Trust.
- 02 November 2020
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- DMD Hub Clinical Trial Coordinator Profile: Mashal Asif, Bristol Royal Hospital for Children
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Today, we’re pleased to share an update from Mashal Asif who is the DMD Hub Clinical Trial Coordinators at Bristol Royal Hospital for Children
Bristol officially joined the DMD Hub in 2018, with £41,151 in funding for a Clinical Trial Coordinator post. The funding for this post is kindly supported by the Mulberry Trust.
- 12 August 2020
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- DMD Hub Clinical Trial Coordinator Profile: Tracy Langan, Royal Hospital for Children Glasgow
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Today, we’re speaking to Tracy Langan, from the Royal Hospital for Children Glasgow about her experiences as a DMD Hub Trial Coordinator.
Glasgow joined the DMD Hub in 2020, with £183,760 to fund three posts – Consultant Paediatric Neurologist, Trial Coordinator and Research Physiotherapist.
We would like to thank Project Go, a Duchenne UK Family Fund, and all their supporters, for contributing funds towards the Research Physiotherapist role.
- 11 August 2020
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- DMD Hub Clinical Trial Coordinator Network
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The DMD Hub is building networks of support for the different people involved in running clinical trials, to support all the DMD Hub sites around the UK to run more trials, so more patients with DMD can access research.
This week, we’re pleased to be sharing details about one of these support networks: the DMD Hub Clinical Trial Coordinator Network. We’ll also be profiling three DMD Hub Trial Coordinators who all work at different DMD Hub sites supporting clinical trials.
- 10 August 2020
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- DMD Hub Webinar
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Yesterday, Duchenne UK hosted a webinar about the DMD Hub.
Our co-founders, Emily and Alex, were joined by Emma Heslop, DMD Hub Manager, and Michela Guglieri, Honorary Consultant at the John Walton Centre Newcastle. The webinar provided an update on our plans, through the DMD Hub, to support gene therapy trials coming to the UK and how we are working with DMD Hub Hospital sites to plan for re-opening clinical research facilities, given the restrictions put in place due to COVID-19.
- 25 June 2020
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