DMD Hub News

News and updates with the latest clinical trials, medical reports and interesting developments within the DMD community.

Latest


DMD Hub Impact Report 2020

We are pleased to share with you the DMD Hub Impact Report 2020.

02 December 2020
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Additional Updates


DMD Hub News

DMD Hub Impact Report 2020

We are pleased to share with you the DMD Hub Impact Report 2020.

02 December 2020
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DMD Hub Nurses Network

The DMD Hub is building networks for the different staff involved in running clinical trials, to support all the DMD Hub sites around the UK to run more trials; so more patients with DMD can access research.

23 November 2020
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Sarepta MOMENTUM Phase 2 clinical trial now recruiting in the UK

We are pleased to announce that Sarepta's Phase 2 MOMENTUM trial is now recruiting in the UK at Alder Hey Children's NHS Foundation Trust.

02 November 2020
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DMD Hub Clinical Trial Coordinator Profile: Mashal Asif, Bristol Royal Hospital for Children

Today, we’re pleased to share an update from Mashal Asif who is the DMD Hub Clinical Trial Coordinators at Bristol Royal Hospital for Children

Bristol officially joined the DMD Hub in 2018, with £41,151 in funding for a Clinical Trial Coordinator post. The funding for this post is kindly supported by the Mulberry Trust.

12 August 2020
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DMD Hub Clinical Trial Coordinator Profile: Tracy Langan, Royal Hospital for Children Glasgow

Today, we’re speaking to Tracy Langan, from the Royal Hospital for Children Glasgow about her experiences as a DMD Hub Trial Coordinator.

Glasgow joined the DMD Hub in 2020, with £183,760 to fund three posts – Consultant Paediatric Neurologist, Trial Coordinator and Research Physiotherapist.

We would like to thank Project Go, a Duchenne UK Family Fund, and all their supporters, for contributing funds towards the Research Physiotherapist role.

11 August 2020
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DMD Hub Clinical Trial Coordinator Network

The DMD Hub is building networks of support for the different people involved in running clinical trials, to support all the DMD Hub sites around the UK to run more trials, so more patients with DMD can access research.

This week, we’re pleased to be sharing details about one of these support networks: the DMD Hub Clinical Trial Coordinator Network. We’ll also be profiling three DMD Hub Trial Coordinators who all work at different DMD Hub sites supporting clinical trials.

10 August 2020
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DMD Hub Webinar

Yesterday, Duchenne UK hosted a webinar about the DMD Hub.

Our co-founders, Emily and Alex, were joined by Emma Heslop, DMD Hub Manager, and Michela Guglieri, Honorary Consultant at the John Walton Centre Newcastle. The webinar provided an update on our plans, through the DMD Hub, to support gene therapy trials coming to the UK and how we are working with DMD Hub Hospital sites to plan for re-opening clinical research facilities, given the restrictions put in place due to COVID-19.

25 June 2020
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DMD Hub COVID-19 Community Update

The COVID-19 pandemic has been challenging for the Duchenne community and the neuromuscular centres where patients attend for appointments and to take part in clinical trials.

The DMD Hub has continued to play a key coordination role between sites, sponsors and patients involved in clinical research.

22 June 2020
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DMD Hub COVID-19 Update - 31st March 2020

In these very difficult and uncertain time for us all in the Duchenne community, we want to reassure you that we are doing everything we can to stay on top of the situation as it develops.  

 

31 March 2020
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DMD Hub Clinical Trial COVID-19 Update

We are conscious that this is a very difficult and uncertain time for us all in the Duchenne community, and we want to reassure you that we are doing everything we can to stay on top of the situation as it develops.  
 

19 March 2020
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