DMD Hub News

News and updates with the latest clinical trials, medical reports and interesting developments within the DMD community.

Latest


DMD Hub Webinar

Yesterday, Duchenne UK hosted a webinar about the DMD Hub.

Our co-founders, Emily and Alex, were joined by Emma Heslop, DMD Hub Manager, and Michela Guglieri, Honorary Consultant at the John Walton Centre Newcastle. The webinar provided an update on our plans, through the DMD Hub, to support gene therapy trials coming to the UK and how we are working with DMD Hub Hospital sites to plan for re-opening clinical research facilities, given the restrictions put in place due to COVID-19.

25 June 2020
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Additional Updates


DMD Hub News

DMD Hub Webinar

Yesterday, Duchenne UK hosted a webinar about the DMD Hub.

Our co-founders, Emily and Alex, were joined by Emma Heslop, DMD Hub Manager, and Michela Guglieri, Honorary Consultant at the John Walton Centre Newcastle. The webinar provided an update on our plans, through the DMD Hub, to support gene therapy trials coming to the UK and how we are working with DMD Hub Hospital sites to plan for re-opening clinical research facilities, given the restrictions put in place due to COVID-19.

25 June 2020
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DMD Hub COVID-19 Community Update

The COVID-19 pandemic has been challenging for the Duchenne community and the neuromuscular centres where patients attend for appointments and to take part in clinical trials.

The DMD Hub has continued to play a key coordination role between sites, sponsors and patients involved in clinical research.

22 June 2020
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DMD Hub COVID-19 Update - 31st March 2020

In these very difficult and uncertain time for us all in the Duchenne community, we want to reassure you that we are doing everything we can to stay on top of the situation as it develops.  

 

31 March 2020
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DMD Hub Clinical Trial COVID-19 Update

We are conscious that this is a very difficult and uncertain time for us all in the Duchenne community, and we want to reassure you that we are doing everything we can to stay on top of the situation as it develops.  
 

19 March 2020
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DMD Hub Site Updates from Leeds

Since 2018, the DMD Hub and Duchenne UK have invested £108,324 to fund two key roles at Leeds Teaching Hospital – a Neuromuscular Coordinator, Nadia Khan and a Neuromuscular Clinical Research Fellow, Cristina Martoz Lozano. We are pleased to share with you an update from DMD Hub site Leeds Teaching Hospital.

24 February 2020
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Tamoxifen clinical trial, co-funded by Duchenne UK, is fully recruited, results expected early next year

Duchenne UK is pleased to announce that TAMDMD, the Tamoxifen trial, led by Professor Dirk Fischer, has now been fully recruited for the main group of patients.

This means that in 12 months, these patients will have completed their 48 weeks of treatment and results of the trial can be expected in Spring 2021.

12 February 2020
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Trial Termination of Wave Life Sciences Suvodirsen

The Phase 1 Open Label Extension and Phase 2 Clinical Trial into Suvodirsen has been terminated on the basis of interim data.

16 December 2019
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DMD Hub Impact Report

We are very pleased to be able to share with you our first ever DMD Hub Impact Report. The report details all the incredible achievements and progress we have made to expand clinical trial capacity since 2014.

21 November 2019
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Trial Termination of RO7239361

The Phase I/II Extension and the Phase I/III Clinical trial into Roche RO7239361 has been terminated, on the basis of interim data.

06 November 2019
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DMD Hub Site Updates from Alder Hey, Bristol and Birmingham
29 October 2019
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