DMD Hub News

News and updates with the latest clinical trials, medical reports and interesting developments within the DMD community.

Latest


DMD Hub COVID-19 Update

We are conscious that this is a very difficult and uncertain time for us all in the Duchenne community, and we want to reassure you that we are doing everything we can to stay on top of the situation as it develops.  
 

19 March 2020
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Additional Updates


DMD Hub News

DMD Hub COVID-19 Update

We are conscious that this is a very difficult and uncertain time for us all in the Duchenne community, and we want to reassure you that we are doing everything we can to stay on top of the situation as it develops.  
 

19 March 2020
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DMD Hub Site Updates from Leeds

Since 2018, the DMD Hub and Duchenne UK have invested £108,324 to fund two key roles at Leeds Teaching Hospital – a Neuromuscular Coordinator, Nadia Khan and a Neuromuscular Clinical Research Fellow, Cristina Martoz Lozano. We are pleased to share with you an update from DMD Hub site Leeds Teaching Hospital.

24 February 2020
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Tamoxifen clinical trial, co-funded by Duchenne UK, is fully recruited, results expected early next year

Duchenne UK is pleased to announce that TAMDMD, the Tamoxifen trial, led by Professor Dirk Fischer, has now been fully recruited for the main group of patients.

This means that in 12 months, these patients will have completed their 48 weeks of treatment and results of the trial can be expected in Spring 2021.

12 February 2020
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Trial Termination of Wave Life Sciences Suvodirsen

The Phase 1 Open Label Extension and Phase 2 Clinical Trial into Suvodirsen has been terminated on the basis of interim data.

16 December 2019
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DMD Hub Impact Report

We are very pleased to be able to share with you our first ever DMD Hub Impact Report. The report details all the incredible achievements and progress we have made to expand clinical trial capacity since 2014.

21 November 2019
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Trial Termination of RO7239361

The Phase I/II Extension and the Phase I/III Clinical trial into Roche RO7239361 has been terminated, on the basis of interim data.

06 November 2019
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DMD Hub Site Updates from Alder Hey, Bristol and Birmingham
29 October 2019
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Duchenne UK expands the DMD Hub to give DMD patients in London and the South-East more opportunities to access research

Duchenne UK announces funding of £193,487 for two new DMD Hub posts at Evelina Children’s Hospital in London, to help more patients with DMD in London and the South access clinical trials.

04 June 2019
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Duchenne UK grants £130,173 to Royal Manchester Children's Hospital to join the ground-breaking DMD Hub.

This will significantly expand trial capacity for Duchenne Muscular Dystrophy in the UK, particularly in the north west of England.

The charity's co-founder Alex Johnson -- recently awarded the Pride of Manchester -- said it was a huge boost to research in the region.

30 May 2019
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PolarisDMD Phase 3 clinical trial for edasalonexent now recruiting in the UK

We are pleased to announce that Catabasis Pharmaceutical's PolarisDMD Phase 3 trial for edasalonexent is now recruiting in the UK at Bristol Royal Hospital for Children. Evelina London Children's Hospital, Great Ormond Street Hospital and Royal Manchester Children’s Hospital will begin recruitment soon.

26 March 2019
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