DMD Hub News

News and updates with the latest clinical trials, medical reports and interesting developments within the DMD community.

Latest


Launch of the DMD Hub Central Recruitment Pilot Project

The John Walton Muscular Dystrophy Research Centre (Newcastle University) and Duchenne UK are delighted to announce that the DMD Hub Central Recruitment Pilot Project is now active and accepting registrations.   

Register online at: www.dmdhubrecruits.org 

01 April 2022
Read More

Additional Updates


DMD Hub News

Launch of the DMD Hub Central Recruitment Pilot Project

The John Walton Muscular Dystrophy Research Centre (Newcastle University) and Duchenne UK are delighted to announce that the DMD Hub Central Recruitment Pilot Project is now active and accepting registrations.   

Register online at: www.dmdhubrecruits.org 

01 April 2022
Read More
DMD Hub Impact Report 2021

Read about the impact of the DMD Hub in 2021 in our latest impact report.

16 March 2022
Read More
The DMD Hub Central Recruitment Pilot Project Webinar - Thursday, 31st March 2022, 7-8pm

On Thursday 31st March 2022, 7-8pm, Dr Michela Guglieri (Consultant Neurologist at Newcastle University and Newcastle Hospitals NHS Foundation Trust) and Dr Anne-Marie Childs (Consultant Paediatric Neurologist, Leeds Teaching Hospitals NHS Trust) will be hosting a webinar (for patients/families) to discuss the launch of the DMD Hub Central Recruitment Pilot Project.

 

14 March 2022
Read More
DMD Hub team expands to provide more support to patients, sites and industry

In the last few months, the DMD Hub has recruited two new staff members to work with Emma Heslop, the DMD Hub Manager, and to look at new areas where the DMD Hub can develop support. 

11 November 2021
Read More
New clinical trial posts funded at the DMD Hub 

The DMD Hub is one of Duchenne UK’s flagship projects and has successfully expanded capacity for Duchenne muscular dystrophy (DMD) clinical trials in the UK. By funding key posts at hospital sites across the UK, many more boys are now able to take part in trials for potentially life-changing treatments.    

We were delighted to welcome the following new staff to the DMD Hub network. Each team member will play an important role in running effective trials for potential DMD treatments: 

13 August 2021
Read More
Virtual reality trial to help children with DMD engage in physiotherapy at DMD Hub site

A team of researchers and clinicians from Sheffield Hallam University, Sheffield Children’s NHS Foundation Trust and Leeds Teaching NHS Trust are developing an immersive virtual reality (VR) platform to help children living with Duchenne muscular dystrophy (DMD) engage in physiotherapy exercises.

06 August 2021
Read More
Key milestone: first UK patient enrolled in DMD gene therapy trial at DMD Hub site

Pfizer has announced that the first UK-based DMD patient has been enrolled in a gene therapy trial at Newcastle Hospitals NHS Foundation, a DMD Hub site.

12 May 2021
Read More
DMD Hub used as a showcase by the National Institute for Health Research

This week we were delighted to have been featured in a publication from the National Institute for Health Research (NIHR), who have highlighted the DMD Hub, as an example of how they work alongside industry to support clinical trials. 

28 April 2021
Read More
Gene Therapy Recruitment Statement

Gene Therapy is a promising new treatment for DMD and the DMD Hub is committed to making the recruitment process to these trials as clear as possible for the patient community

24 February 2021
Read More
Recommendations for gene therapy trials preparedness published in Journal for Neuromuscular Disorders

Important findings about the readiness of the UK to host clinical trials in gene therapy, have been published in the Journal for Neuromuscular Disorders.

02 February 2021
Read More

We have placed cookies on your computer to help make this website better. For more information please click here

By continuing to use this site or closing this panel, we'll assume you're OK to continue. You can view our full privacy policy here