DMD Hub News

News and updates with the latest clinical trials, medical reports and interesting developments within the DMD community.

Latest


DMD Hub team expands to provide more support to patients, sites and industry

In the last few months, the DMD Hub has recruited two new staff members to work with Emma Heslop, the DMD Hub Manager, and to look at new areas where the DMD Hub can develop support. 

11 November 2021
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Additional Updates


DMD Hub News

DMD Hub team expands to provide more support to patients, sites and industry

In the last few months, the DMD Hub has recruited two new staff members to work with Emma Heslop, the DMD Hub Manager, and to look at new areas where the DMD Hub can develop support. 

11 November 2021
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New clinical trial posts funded at the DMD Hub 

The DMD Hub is one of Duchenne UK’s flagship projects and has successfully expanded capacity for Duchenne muscular dystrophy (DMD) clinical trials in the UK. By funding key posts at hospital sites across the UK, many more boys are now able to take part in trials for potentially life-changing treatments.    

We were delighted to welcome the following new staff to the DMD Hub network. Each team member will play an important role in running effective trials for potential DMD treatments: 

13 August 2021
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Virtual reality trial to help children with DMD engage in physiotherapy at DMD Hub site

A team of researchers and clinicians from Sheffield Hallam University, Sheffield Children’s NHS Foundation Trust and Leeds Teaching NHS Trust are developing an immersive virtual reality (VR) platform to help children living with Duchenne muscular dystrophy (DMD) engage in physiotherapy exercises.

06 August 2021
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Key milestone: first UK patient enrolled in DMD gene therapy trial at DMD Hub site

Pfizer has announced that the first UK-based DMD patient has been enrolled in a gene therapy trial at Newcastle Hospitals NHS Foundation, a DMD Hub site.

12 May 2021
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DMD Hub used as a showcase by the National Institute for Health Research

This week we were delighted to have been featured in a publication from the National Institute for Health Research (NIHR), who have highlighted the DMD Hub, as an example of how they work alongside industry to support clinical trials. 

28 April 2021
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Gene Therapy Recruitment Statement

Gene Therapy is a promising new treatment for DMD and the DMD Hub is committed to making the recruitment process to these trials as clear as possible for the patient community

24 February 2021
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Recommendations for gene therapy trials preparedness published in Journal for Neuromuscular Disorders

Important findings about the readiness of the UK to host clinical trials in gene therapy, have been published in the Journal for Neuromuscular Disorders.

02 February 2021
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DMD Hub Impact Report 2020

We are pleased to share with you the DMD Hub Impact Report 2020.

02 December 2020
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DMD Hub Nurses Network

The DMD Hub is building networks for the different staff involved in running clinical trials, to support all the DMD Hub sites around the UK to run more trials; so more patients with DMD can access research.

23 November 2020
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Sarepta MOMENTUM Phase 2 clinical trial now recruiting in the UK

We are pleased to announce that Sarepta's Phase 2 MOMENTUM trial is now recruiting in the UK at Alder Hey Children's NHS Foundation Trust.

02 November 2020
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