The DMD Hub ToolKit

The DMD Hub Toolkit is a selection of expanding resources for industry and research sites aimed at upskilling sites and offering pragmatic support in trial set, thereby promoting a common approach to conducting clinical trials at sites in the UK.

The tools are grouped by category below. Each tool is either publicly available or confidential (accessible via a request form).


= Public

= Confidential

It is well-understood that receiving the best care can dramatically improve the quality of life and life expectancy of individuals with Duchenne muscular dystrophy, enabling them to lead fulfilling, independent lives into adulthood. The importance of international care recommendations cannot be underestimated.

These recommendations are currently being reviewed by the DMD Care UK project, to ensure that all patients with DMD have access to the best care. 

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TREAT-NMD is a network for the neuromuscular field that provides an infrastructure to ensure that the most promising new therapies reach patients as quickly as possible. Since its launch in January 2007 the network's focus has been on the development of tools that industry, clinicians and scientists need to bring novel therapeutic approaches through preclinical development and into the clinic, and on establishing best-practice care for neuromuscular patients worldwide.

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Guidance documents for becoming audit ready. 


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Tools to help with consenting in clinical trials.


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The DMD Hub has created this costing guidelines template to help industry and trial sites determine fair and uniform costing throughout all clinical trial sites in the UK. 

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These tools cover the use of MRI in DMD clinical trials. 

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Use these tools for support completing ethics and Integrated Research Application System (IRAS) forms. 

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Bringing in patients, clinicians and industry representatives, these webinars help facilitate discussions around these important issues, and to identify areas where the DMD Hub can support. 

The DMD HUB Central Recruitment Pilot Project

What happens when clinical trials end

VISION-DMD Top line Results

DMD Hub: Gene Therapy - What you need to know


More videos can be found on the Duchenne UK YouTube page: Duchenne UK - YouTube


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