We are conscious that this is a very difficult and uncertain time for us all in the Duchenne community, and we want to reassure you that we are doing everything we can to stay on top of the situation as it develops.
Given the extra resources that will be required from the NHS to care for patients with the COVID-19 virus, it is likely that clinical trials will be affected.
As the DMD Hub, we are working with sites and sponsors to establish:
1. What restrictions might be put in place at each hospital?
2. How study visits could be carried out to ensure patient safety is guaranteed?
3. How patients will receive their medication?
4. How recruitment for upcoming and ongoing trials may be affected?
It is hard to predict how the situation will evolve, but for now it is being dealt with on a case by case, patient by patient, basis. If and when we have a clearer overall picture, we will share this information with you.
With best wishes,
The DMD Hub and Duchenne UK Team