Clinical lead for the muscle team; Consultant Paediatric Neurologist.
Dr Tracey Willis is a Paediatric Neurologist with an interest in neuromuscular diseases. She completed her paediatric neurology training in Birmingham, UK and then worked as a paediatric neurologist in Birmingham, UK and Auckland, New Zealand. In 2008 she became the Muscular Dystrophy UK (MDUK) clinical research fellow at the Institute of Genetic Medicine in Newcastle with Professor Straub and Professor Kate Bushby and obtained her doctorate which involved coordinating a multicentre MRI/MRS study in LGMD2I and designing and implementing the FKRP international patient registry. During this time she also coordinated a national DBS audit which has contributed to a larger European DBS audit in diagnosing LOPD.
She is currently the clinical lead for the muscle service at Oswestry, a tertiary referral centre for patients with neuromuscular conditions, both paediatric and adults, and this has recently been awarded 'centre of excellence' by MDUK. She also works at Birmingham children's hospital, running the neuromuscular service. Clinically she is involved in the diagnosis and care of a broad spectrum of patients with neuromuscular diseases.
She continues an active interest in research; recently receiving a grant for an FSHD exercise study, and collaborates with many colleagues both in the UK and aboard in various projects, advisory panels and working groups. She is medical monitor for FOR-DMD an international steroid trial in DMD and is on the steering committee for the FSHD international registry