I qualified as a paediatric nurse in March 2015, and worked on a children’s ward within the Royal Victoria Infirmary before joining the muscle team as a Research Nurse in September 2016. My role was introduced to help increase trial capacity for patients with DMD as part of the ‘Newcastle Plan’ and funded by Duchenne UK and Joining Jack. I currently work across two sites, at the Clinical Research Facility at the Royal Victoria Infirmary and at the John Walton Muscular Dystrophy Research Centre.
The role includes the management of all aspects of managing a clinical trial, from the initial setup of a study to the day-to-day delivery of trials. My clinical skills involve venepuncture, cannulation and portacath access, as well as recording ECGs and processing samples. I develop professional relationships with the patients and families enrolled on trials and provide holistic care and support during their participation in a study. My role has allowed me to develop links with the muscle team that enables the sharing of relevant knowledge and information about the patient group as well as increasing trial capacity.